Sunday, July 15, 2012
Was much worse than anticipated. We were originally told that it would be a quick 20 min procedure. I was thinking that they would cut the skin, pull out the tumor and close up. The surgery was 2 hours! When the doctor went in, the mass was much larger than anticipated.. 2 inches long! It left a giant hole in the center of the palate, similar to a cleft palate. The doctor then had to reconstruct his entire palate, cutting on the sides and pulling tissue to the center. So now instead of once giant hole, there are four smaller holes with sutures in the middle. He said it would heal quicker this way and the tissue will just fill in. He came out to talk to us and show us the pictures prior to going back to see Rocco. I was in tears, to say the least, seeing the pictures (I have them, but I won't traumatize you with seeing) and then to see my son in such pain!
Yesterday was beyond difficult, emotionally draining, and I'm sure worse for Rocco. However, without all of your prayers and prayers from our family and friends, I'm sure it would have been worse. So thank you! I know we will get through this. I have faith that God has a plan for good.
Please continue to pray for Rocco. He has yet to eat more than 2 bites or drink a bottle. I am able to get some water down, however. Yesterday he cried most of the day and would only sit with me. Today he is already showing signs of improvement, playing with his brother.
We should get the pathology report by tuesday and we go in for a check up at CHOC. I am scared to death, but hoping for the best.
Thank you again for your continued support and prayers!